For people with FCS, actually getting to a diagnosis can take a long time. Patients see on average five different specialists before they find one who understands FCS and can appropriately manage their care.
It Doesn’t Have To Be This Way
There are specific things that YOU can do to take control of your symptoms and find the right healthcare provider.
The first thing you can do is to organize your health records. If you have a history of abdominal pain, pancreatitis, or documented high triglycerides, be sure that you have this information handy with you when you speak to a healthcare provider, such as a Lipidologist. Documenting this type of information is critical. It provides important, relevant clues that your healthcare providers can act on.
Next, make sure you know where your health information is so it’s available when you need it. With the FCS CareBook, you can easily organize FCS educational materials, medical records, prescriptions, and more – putting information where you need it, for when you need it.
Explore what’s inside the FCS CareBook below. It’s available for free; order your FCS CareBook here.
