Please join us for the FCS Holiday Connection Webinar – an online event designed to give FCS patients, caregivers, families, and healthcare professionals usable tips for managing the physical and emotional demands of this holiday season.

Session 1

December 12, 2017

8:00 pm EST (5:00 pm PST)

Session 2

December 15, 2017

12:00 pm EST (9:00 am PST)

To participate in the live FCS Holiday Connection Webinar, simply register for the event and you will be sent a notification with details to log in.

During the live broadcast you will hear from a registered dietitian who will share nutrition strategies and tips for staying healthy this holiday season.

During this webinar you will learn how to:

  • Explore delicious and nutritious, low-fat, calorie-rich alternatives to traditional, high-fat holiday foods with a registered dietitian nutritionist.
  • Learn strategies for making the right food choices and coping with long-held beliefs about holiday feasting.
  • Find solutions to help people living with FCS not just survive the holidays, but also to thrive and enjoy the festivities.
  • After the webinar, join us for questions and answers with the speakers.


Audio in French is also available for this webinar.

Audio également disponible en français pour le webinaire.


Webinar Speakers

Wahida Karmally

Director of Nutrition in The Irving Center for Clinical Research

Wahida Karmally is the Director of Nutrition in the Irving Institute for Clinical and Translational Research; Associate Research Scientist and teaches in the College of Physicians and Surgeons, College of Dental Medicine and Institute of Human Nutrition, Columbia University. Dr. Karmally is a past director for the American Diabetes Association (2008-2010) and is a Certified Diabetes Educator. Dr. Karmally earned her doctor of public health in Health Policy and Management from the Columbia University Mailman School of Public Health, and she is currently Associate Editor for the Journal of Clinical Lipidology 2015- .

Mary Felando

Registered Dietitian Nutritionist and Clinical Lipid Specialist

Mary Felando is a Registered Dietitian Nutritionist and Clinical Lipid Specialist in the Los Angeles, Orange County and Palm Springs areas. She received her Bachelor of Science Degree from the University of Maryland, and completed her dietetic internship at Rhode Island Hospital and holds a Master of Science Degree in Human Nutrition from Cornell University. Mary has counseled more than 7000 patients with or at high risk for heart disease in individual, group and home sessions.

Sandy

FCS Patient

Sandy was diagnosed with FCS as an infant and spent her childhood as a research patient at Johns Hopkins in Baltimore. After living with the challenges of FCS for more than 50 years, she met her first FCS patients in 2016 and has finally found the empathy and understanding of others who have this rare disease. Sandy has taken a leadership role in the community by acting as a co-moderator for the Facebook group, Living with FCS. Sandy lives in Kingsport, TN and works at Hillhouse Creative. Sandy is married to Paul, is a mother and a grandmother.

Melissa Goetz

Co-President of the FCS Foundation

Melissa is a mother to three children. Her middle daughter, Giuliana, was diagnosed with FCS (LPLD) when she was 3 weeks old following routine blood work that appeared milky pink with triglycerides over 24,000. At 7 weeks old she was hospitalized with pancreatits, a liver infection and kidney infection. Following her hospital stay, Giuliana was put on a special MCT (medium chain triglyceride) formula which lowered her triglycerides and allowed her to be released from the hospital. Since then, she has maintained a low fat diet (less than 10 grams of fat per day) and has remained symptom free. Giuliana is 4 years old, loves going to school, playing in the backyard and doing flips at gymnastics.