This year the FCS community celebrates FCS Awareness Day on November 5, 2021. But living with familial chylomicronemia syndrome isn’t a one day event – it’s a condition that people struggle with their entire life. Much like living with the condition on a daily basis, we believe FCS awareness should be more than a ‘one and done’ event.

So this year, we are celebrating the fourth annual FCS Awareness Day on a bigger scale. FCS Focus and Ionis Pharmaceuticals is excited to celebrate FCS awareness for the entire month of November. This month we will join the FCS community in raising our voices and celebrating the victories of people living with this condition – to help advocate for global FCS awareness, diagnosis, and understanding.

Make sure your voice is heard and your victories are shared with others who are looking for inspiration and hope. By following these steps to raise awareness we can help others better understand the burden of living with FCS.


Spread the word.
Share this link with family, friends, and colleagues. Start a conversation with them about what it means to live with FCS. Only when they are informed and educated can change begin to happen.

Hashtag your social media posts.
Share your story, as well as your victories, about living with FCS on social media. Help others become aware of the medical and nutritional obstacles FCS patients face daily. Include #FCSAwarenessDay, #ActionFCS, and #livingwithfcs in your posts.

Plan to wear pink – and tell others why you chose this color.
The FCS Foundation chose the color pink to represent the lighter than normal color of blood when it has a high amount of fat in it. Plan to wear pink on November 5th.

Raising FCS awareness is an on-going initiative.
Here are some other ways you can keep the conversation going: