Familial chylomicronemia syndrome
Lindsey lives with FCS

Familial chylomicronemia syndrome (also called FCS, lipoprotein lipase deficiency, Fredrickson Type 1, hyperlipoproteinemia, and familial hyperlipidemia) is characterized by:

  • Pain in the abdomen, often with back pain
  • Extremely high triglycerides
  • Frequent/chronic pancreatitis
  • “Milky” or fatty blood

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“Milky” or fatty looking blood after a blood draw is a distinctive sign of familial chylomicronemia

What is FCS?

Familial chylomicronemia syndrome (FCS) is an inherited condition where the body can’t digest fats, such as triglycerides, often causing stomach pain and pancreatitis.

Patient with familial chylomicronemia syndrome (FCS)

FCS & Pancreatitis

Hypertriglyceridemia (high triglycerides) is the third leading cause of pancreatitis. Patients with FCS often suffer from recurrent pancreatitis.


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Does this sound like you?

Since FCS is a rare disease, it is often underdiagnosed or missed completely. Talk to your doctor if you experience the following:

  • Pain in the abdomen often with back pain
  • Extremely high triglycerides (>500 mg/dL or 5.6 mmol/l) even with medication and/or a low-fat diet
  • Pancreatitis that requires an emergency room visit or hospitalization
  • Been told you have a genetic lipid, triglycerides or fat disorder
  • Have a family member with a history of high triglycerides or a genetic lipid disorder

If you know you have FCS or this sounds like you, here are some things that may help:

Scott lives with FCS