Since FCS is a rare disease, it is often underdiagnosed or missed completely. If you think you might have FCS, it is important to find the right healthcare provider and to organize your health information. The right provider, or team of healthcare providers, can help you manage your condition. It’s also important to organize health information so you can provide the right information when it is needed, for example if you have to go to the emergency room or when you are meeting with a new doctor for the first time.
Talk to your healthcare provider if you experience the following:
If you have FCS or this sounds like you, learn how to get help.Get Help