Lindsey lives with FCS

Have You Experienced the Following Symptoms:

  • Pain in the abdomen, often with back pain
  • Extremely high triglycerides
  • Frequent/chronic pancreatitis
  • “Milky” or fatty blood

Familial chylomicronemia syndrome is also called FCS, lipoprotein lipase deficiency, Fredrickson Type 1, hyperlipoproteinemia, and familial hyperlipidemia.

Sound Like You?
Patient with familial chylomicronemia syndrome (FCS)

FCS & Pancreatitis

Hypertriglyceridemia (high triglycerides) is the third leading cause of pancreatitis. People with FCS often suffer from recurrent pancreatitis.

Diet and lifestyle play a major role in managing familial chylomicronemia syndrome (FCS)

Diet & Lifestyle

Discover how people with FCS can promote the best physical and mental health by taking a holistic approach to managing their disease.

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Get tips, techniques, and tools for living with FCS.

Get Help for FCS

Building a team of Healthcare Providers, organizing health information and documents, and caring for body & mind are essential steps for people with FCS.

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Does This Sound Like You?

Since FCS is a rare disease, it is often underdiagnosed or missed completely. If you think you might have FCS, it is important to find the right healthcare provider and to organize your health information. The right provider, or team of healthcare providers, can help you manage your condition. It’s also important to organize health information so you can provide the right information when it is needed, for example if you have to go to the emergency room or when you are meeting with a new doctor for the first time.

Talk to your healthcare provider if you experience the following:

  • Pain in the abdomen, often with back pain
  • Extremely high triglycerides (greater than 880 mg/dL or 10 mmol/l), even with medication or a low-fat diet
  • Pancreatitis that requires an emergency room visit or hospitalization

If you have FCS or this sounds like you, learn how to get help.

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Scott lives with FCS

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